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PATH is an international organization that drives transformative innovation to save lives and improve health, especially among women and children. We accelerate innovation across five platforms—vaccines, drugs, diagnostics, devices, and system and service innovations—that harness our entrepreneurial insight, scientific and public health expertise, and passion for health equity. By mobilizing partners around the world, we take innovation to scale, working alongside countries primarily in Africa and Asia to tackle their greatest health needs. Together, we deliver measurable results that disrupt the cycle of poor health.
International development and global health represent one of the greatest opportunities for the impact of digital technologies on a global scale. New technologies, approaches and tools are emerging daily, unfortunately into a fragmented and immature digital health market landscape that currently limits their promise to transform country health systems and accelerate and amplify progress towards national and global health goals.
The Center of Digital and Data Excellence (CoDE) is working on a project funded by the US Centers for Disease Control and Prevention to develop, implement, use, and evaluate interoperable health information systems to achieve HIV/AIDS and TB epidemic control through improved health informatics policy, governance, workforce capacity, and systems under PEPFAR.
Under this award, PATH is working with CDC’s Health Informatics Team (HIT) to implement several organizational objectives, one of which is the establishment of data sharing guidelines between each project country and any third party (e.g., another country, World Health Organization [WHO], Africa CDC, US CDC, etc.)
Data sharing guidelines
Data sharing is an integral component of public health. It is essential for making decisions about disease diagnoses and necessary research; policy development; education and empowerment of different actors in health; community mobilization around important health goals and collaboration among stakeholders, and more. With these benefits comes responsibility to manage sharing of data and information including addressing patient privacy, information security, and organizational liability. Data sharing agreements (DSAs) can provide a framework that delineates what data can be shared, with whom, under what conditions, and for what purposes.
Goal: The main goal of this consultancy is three-fold as described below:
- To develop data access, use, and sharing guidelines and agreements. The specific tasks include:
- Review and validate generic health data access, use, and sharing guidelines and associated templates.
- Based on feedback from project stakeholders, finalize the generic health data access, use, and sharing guideline and agreement template so that it is ready for country adaptation.
- Provide a strategic approach/method for the customization to different countries.
- Customize generic health data access, use, and sharing guidelines and agreements for use in countries.
- Customized data use, access template.
- Customized data use, access, and sharing policy guidelines.
- Develop generic implementation guidance for health data access, use, and sharing guidelines and agreements. The specific tasks include:
- Customize generic implementation guidance for health data access, use, and sharing guidelines and agreements.
- Review and validate generic implementation guidance (with stakeholders) for health data access, use, and sharing guidelines and agreements.
- Finalize the generic implementation guidance for health data access, use, and sharing guidelines and agreements to be adapted for country use.
Deliverable: Generic implementation guidance for health data access, use, and sharing policy
- Develop an assessment plan for implemented health data access, use, and sharing policies and agreements. Specific tasks include:
- Pilot assessment tool (a developed assessment tool will be provided to the consultant) and revise as needed. Pilot testing will be carried out through predetermined approaches.
- Outline process/template for developing improvement plans based on assessment findings.
Deliverable: Tested and finalized tool for assessing implemented data access, use, and sharing policies and agreements
- At least 10 years of hands-on experience in health management information systems (HMIS), data governance, and related areas, with a health or related international NGO or bilateral/multilateral organization.
- Extensive experience in data governance at a country or intercountry level including leading data sharing and use initiatives using data sharing agreements and allied structures.
- Extensive practical experience in health information and disease surveillance systems, interoperability, and international standards.
- Experience developing guidelines and protocols for data governance including data access, sharing and use.
- Experience providing technical input to systems integration, use of data management information systems, Health Information Exchanges (HIEs), and tools to facilitate data transmission and use.
- Good interpersonal and people management skills; clear and effective communication skills; and close working relationships with ministries of heath, bilateral organizations, project implementers, and other key stakeholders operating in the health informatics arena.
- Strong technical writing skills.
- Experience and skills in high-level workshop facilitation.
- Experience in facilitating discussions among various stakeholders to achieve consensus.
- Advance degree (MPH, MS, MIS, MA, other) in public health or related fields such as health systems or health information.
- Experience working remotely with diverse teams of geographically distributed employees with multiple perspectives (think global coalitions, associations, or working groups) to set strategies and execute them successfully.
- Knowledge of health information technology (IT) and public health IT standards, including data management including use and sharing, privacy/security, etc. and applications, including electronic medical records (EMRs), laboratory information systems (LIS), HIE.
- Ability to foster effective working relationships with US government, ministries of health, national and international implementing partners at all levels, local organizations, and other program partners, highly desirable.
- Demonstrated experience working with MOH and international organizations to strengthen governance including developing guidelines data sharing and use and supporting their implementation.
- Knowledge of and experience with PEPFAR HIV and M&E data is preferred.
- Ability to communicate fluently in English.
PATH is dedicated to building an inclusive workforce where diversity is valued.
PATH is an equal opportunity employer. Every qualified applicant will be considered for employment. PATH does not discriminate based on race, color, religion, gender, sexual orientation, gender identity, genetic information, age, national origin, marital status, disability status, political ideology, military or protected veteran status, or any other characteristic protected by applicable federal, state, or local law.
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